The Foundation
Established in 2019 to honor Cameron's legacy
The Cameron Boyce Foundation was established in 2019 to honor Cameron’s legacy by curing epilepsy through funded research, education, and awareness campaigns, while continuing to support causes that mattered to him during his life. What sets TCBF apart is where its reach comes from. This isn’t a community built from a marketing plan. It’s the one Cameron curated himself, and it’s what allows the foundation to speak to the epilepsy community and the general public at the same time.
Funding research. Saving lives.
Funding research, educating families, and building community, together.
$2.21 million
raised since inception to funding research and support the community.
$425,000
Iinvested in SUDEP research grants, in partnership with CURE Epilepsy.
18,000+
individuals educated through TCBF resources.
2,500+
Active members in the Now What Support Group.
How we're supporting the community
Research, community, and education, working together to change what happens next for families facing epilepsy.
Funding Research
The Cameron Boyce Foundation has invested $425,000 in research grants for Sudden Unexpected Death in Epilepsy, in partnership with CURE Epilepsy. In 2024, that funding supported a SUDEP Risk Predictor Workshop, bringing researchers together to identify indicators of SUDEP before it happens.
Supporting the Community
The foundation’s community work centers on two support groups: the Now What Support Group, with over 2,500 active members, and a newly launched Young Adult Support Group, already past 400. Both are guided by a Young Adult Community Advisory Board of young people living with epilepsy, with that reach extending to over 1.6 million followers across social media.
Epilepsy Support and Education
The foundation has educated more than 18,000 people through resources like a college guide, a seizure first aid guide, and a Level 4 epilepsy center finder tool. In 2024, it also launched the Now What Podcast, hosted by two of Cameron’s closest friends, reaching 500,000 views across 10 episodes.
“Thanks to everyone who has continued to build community around the foundation. Cameron was a magnetic person, and a huge connector who really cared about being there for others, and I love seeing that continue within the foundation. The foundation is constantly evolving with time, serving as a place to connect and a resource for those who are or know someone affected by epilepsy.”
Peyton List
“What TCBF has done is create reason out of a tremendous, devastating loss. Because of Cameron’s story, people are learning about SUDEP for the first time, erasing the stigma around epilepsy through conversation, and finding community. We are changing the narrative around epilepsy and SUDEP, and we see that impact on a personal level everyday in our community.”
Sophie Reynolds
CURE Epilepsy and the Cameron Boyce Foundation
One mission, two voices. The Cameron Boyce Foundation has joined the CURE Epilepsy family.
CURE Epilepsy, the largest nongovernmental funder of epilepsy research, will now serve as the long-term steward of Cameron’s legacy, providing the scientific leadership and infrastructure to expand the reach of the Foundation’s work
This isn’t the end of the Foundation’s story. Its programs continue under its own name and its own voice, including the Now What support groups and its social media channels, preserving the connection Cameron built with this community.
What changes is the scale behind it: CURE Epilepsy has already funded over $6 million in SUDEP research across 40 grants, and that infrastructure now supports the Foundation’s mission too.