1 IN 26 PEOPLE WILL DEVELOP EPILEPSY IN THEIR LIFETIME
Cameron tragically passed away in 2019 from SUDEP (Sudden Unexpected Death in Epilepsy).
SUDEP is when someone with epilepsy dies suddenly with no other cause found. It’s the leading cause of death for people with uncontrolled seizures
SUDEP takes an estimated 3,000 lives in the US every year.
Help us cure epilepsy, and end SUDEP.
Small changes can make a big difference. Here’s where to start.
1
Donate
Every gift funds research to cure epilepsy and end SUDEP, carrying Cameron’s legacy forward.
2
Fundraise
Start a birthday or peer fundraiser and rally your friends and family behind the mission.
3
Buy Merch
Wear the mission. Every purchase helps raise awareness and supports the foundation’s work.
Funding research. Saving lives.
Funding research, educating families, and building community, together.
$2.21 million
raised since inception to funding research and support the community.
$425,000
Iinvested in SUDEP research grants, in partnership with CURE Epilepsy.
18,000+
individuals educated through TCBF resources.
2,500+
Active members in the Now What Support Group.
How we're supporting the community
Research, community, and education, working together to change what happens next for families facing epilepsy.
Funding Research
The Cameron Boyce Foundation has invested $425,000 in research grants for Sudden Unexpected Death in Epilepsy, in partnership with CURE Epilepsy. In 2024, the Foundation sponsored the SUDEP Risk Assessment and Prevention Workshop, bringing 25 researchers from across the world together in New York to plan the path toward a SUDEP risk assessment tool.
Supporting the Community
The foundation’s community work centers on two support groups: the Now What Support Group, with over 2,500 active members, and a newly launched Young Adult Support Group, already past 400. Both are guided by a Young Adult Community Advisory Board of young people living with epilepsy, with that reach extending to over 1.6 million followers across social media.
Epilepsy Support and Education
The foundation has educated more than 18,000 people through resources like a college guide, a seizure first aid guide, and a Level 4 epilepsy center finder tool. In 2024, it also launched the Now What Podcast, hosted by two of Cameron’s closest friends, reaching 500,000 views across 10 episodes.